My Journey to the FND Access Programme

When I first began to suspect that I might have Functional Neurological Disorder, I felt lost.

I was given very little information to help me understand what was happening to me. I had questions, uncertainty and a condition I knew very little about. Much of what I eventually learned came through my own research, my lived experience and, importantly, the support and experiences shared by people within the FND community.

That experience stayed with me.

I know what it can feel like to be searching for answers and trying to make sense of FND when you don't know where to begin. I wanted to turn that experience into something positive and practical that could help somebody else.

That is why I created the FND Access Programme.

The programme has a simple purpose: to help make accessible information about FND available to people who may need it, without asking them to pay for the book.

Through the programme, I personally fund up to 50 physical copies each month of Understanding Functional Neurological Disorder: A Practical Guide for Patients, Families and Healthcare Professionals.

These copies are made available free of charge to people who are newly diagnosed, awaiting or exploring a possible diagnosis, or who simply feel that the guide could help them better understand FND.

Giving Something Back

The FND community helped me during a time when I was searching for understanding. The FND Access Programme is my way of putting something back into that community.

No membership. No judgement. No charge for the book.

No one should face FND alone.